Collaborative Data Services Shared Resource

Fred Hutchinson Cancer Center, Seattle WA

Investigators

Linked publications, trials & patents

Abstract

PROJECT SUMMARY: COLLABORATIVE DATA SERVICES SHARED RESOURCE Collaborative Data Services Shared Resource (CDSSR) of the Fred Hutch/University of Washington/Seattle Children’s Cancer Consortium provides strategic services in the design, oversight, and implementation of scientific studies by Consortium faculty members. It supports multiple studies, through managing participant recruitment and retention, capturing data, surveying study participants, and designing and managing biospecimen repositories. CDSSR collaborates with researchers to implement funded research studies by developing novel, tailored approaches to individual project needs either by adapting current services, or by introducing new technologies or services CDSSR has 12 full- or part-time staff, and three service cores: (1) Programming; (2) Project Management; and (3) Interviewing, Translation, and Interpretation Services (ITIS). These operate under three managers with expertise in these areas, and an administrator. CDSSR is directed by Dr. Catherine Duggan, with guidance from an eight-member faculty advisory committee, which meets twice annually. CDSSR services support Consortium goals by providing access to (1) customized programming services and data infrastructure solutions; (2) project management beginning with consultation with researchers prior to study initiation, through project development, and implementation. These activities leverage in-house research and administrative support services including IRB submissions, and tracking and reporting clinical research activities in the Fred Hutch clinical trial management system (CTMS); (3) a research call center staffed by a highly trained team of bilingual (Spanish/English) research interviewers; (4) Spanish-English medically- certified translation and interpretation services; (5) training to Consortium faculty and staff on data capture, programming, and interviewing techniques; and (6) infrastructure support to maintain programmatic functions— for example, design of biospecimen repositories, call center management, and maintenance of the Consortium’s instance of Research Electronic Data Capture (REDCap). For the period of FY19 through FY23, CDSSR provided services to 100 Consortium member users, representing 71% of all users and all the Consortium’s research programs. CDSSR supported publication of 145 peer-reviewed manuscripts; maintained training support for REDCap users and research staff and research interviewing techniques; and increased cost- effectiveness and efficiency of multiple studies. Priority is given to Consortium faculty with peer-reviewed projects and junior faculty seeking peer-reviewed funding. The resource continues to expand upon its technical, collaborative, and project management expertise, by providing access to current technologies adapted for research use, introducing new services based on clients’ needs, and expanding its client base.