CORE--CLINICAL
$211,315P01FY2002DCNIH
Children'S Hospital Of Philadelphia, Philadelphia PA
Investigators
Linked publications & trials
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Abstract
The Clinical Core will ascertain and oversee the clinical evaluation of new patients and follow-up patients with VCFS. A large number of clinical sub-specialties ranging from dysmorphology, cardiology, speech/language, and hearing will be involved. Work will be coordinated through a wide range of clinically relevant and research oriented tests. Databases will be established and maintained and ongoing contact with the families will also be a component maintained through the "22q and You" newsletter.
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