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The Patient-Reported Outcomes, Community-Engagement and Language (PRO-CEL) Core

$403,888P30FY2024CANIH

Sloan-Kettering Inst Can Research, New York NY

Investigators

Thomas Michael Atkinsoncontact

Linked publications, trials & patents

Trial NCT03699631Trial NCT02595918Trial NCT02417701Trial NCT02219737Trial NCT02152995Trial NCT01979523Trial NCT01947023Trial NCT01902160Trial NCT01705340Trial NCT01643278Trial NCT01638546Trial NCT01587352Trial NCT01585805Trial NCT01326702Trial NCT01281865Trial NCT01196416Trial NCT01154452Trial NCT01143402Trial NCT01119599Trial NCT01051557Trial NCT01026623Trial NCT01016015Trial NCT00957905Trial NCT00866177Trial NCT00729157Trial NCT00639509Trial NCT00601692Trial NCT00589472Trial NCT00570401Trial NCT00567229Trial NCT00550628Trial NCT00541034Trial NCT00528450Trial NCT00522301Trial NCT00521014Trial NCT00519974Trial NCT00514254Trial NCT00498927Trial NCT00483678Trial NCT00474994Trial NCT00471679Trial NCT00471601Trial NCT00470574Trial NCT00470470Trial NCT00462982Trial NCT00462501Trial NCT00459875Trial NCT00458705Trial NCT00453310Trial NCT00450827Trial NCT00416351Trial NCT00404365Trial NCT00398138Trial NCT00397904Trial NCT00369174Trial NCT00354679Trial NCT00334893Trial NCT00324480Trial NCT00245102Trial NCT00104845Trial NCT00090337Trial NCT00089245Trial NCT00087009Trial NCT00072345Trial NCT00072319Trial NCT00070057Trial NCT00067015Trial NCT00062374Trial NCT00059891Trial NCT00058253Trial NCT00054132Trial NCT00046917Trial NCT00040898Trial NCT00040872Trial NCT00039286Trial NCT00037011Trial NCT00036933Trial NCT00028730Trial NCT00024258Trial NCT00023764Trial NCT00020891Trial NCT00016146Trial NCT00014534Trial NCT00014469Trial NCT00008294Trial NCT00008242Trial NCT00006044Trial NCT00004245Trial NCT00004066Trial NCT00003923Trial NCT00003819Trial NCT00003173Trial NCT00003023Trial NCT00002981Trial NCT00002930Trial NCT00002766Trial NCT00002738Trial NCT00002718Trial NCT00002663Trial NCT00002558

Abstract

ABSTRACT The Patient-Reported Outcomes, Community Engagement, and Language (PRO-CEL) Core enhances the objectives of the Center's research programs by supporting the array of MSK investigators who wish to capture self-reported information from culturally diverse patients, caregivers, clinical staff, and community members. The faculty of the PRO-CEL Core are nationally recognized social, behavioral sciences, and community-engagement experts who provide technical assistance to all users throughout their various stages of research, including grant and protocol development, research study assistant and support staff training, and result dissemination. The PRO-CEL Core aims to 1) provide expert consultation with respect to selection, analysis, and interpretation of psychometrically sound patient-reported outcomes (PROs) or other self-report instruments for the capture of health-related quality of life (HRQoL), health behavior change, symptom control, treatment-related adverse events (AEs), and quality of care; 2) support qualitative interview, focus group, and other observational research methodology for generating new testable hypotheses, developing novel assessment tools, and establishing cultural and linguistic equivalency of PRO measures; 3) provide pre-review and feedback of peer-reviewed funding applications consistent with “best practices” in psychosocial, behavioral, and community-engaged oncology research, including culturally and linguistically responsive research; 4) assist with the creation of online surveys for data capture; and 5) provide methodological support for clinical trial, behavioral, and population-based research that seeks to engage community or minority populations. The services provided by the PRO-CEL Core have supported the research of 105 MSK investigators in the past year, and during the past grant period, the work of this Core has contributed to 397 peer-reviewed publications.

View original record on NIH RePORTER →
The Patient-Reported Outcomes, Community-Engagement and Language (PRO-CEL) Core · GrantIndex